Article Details

Research Database: Article Details

Citation:  Carlson, S.R., & Wilt, C.L. (2020). Learning about and qualifying for Home and Community-Based Services Waivers: Families’ perspectives and experiences. Journal of Vocational Rehabilitation, 53 (1), 17-28.
Title:  Learning about and qualifying for Home and Community-Based Services Waivers: Families’ perspectives and experiences
Authors:  Carlson, S.R., & Wilt, C.L.
Year:  2020
Journal/Publication:  Journal of Vocational Rehabilitation
Publisher:  IOS Press
DOI:  https://doi.org/10.3233/JVR-201082
Full text:  https://content.iospress.com/articles/journal-of-vocational-rehabil...   
Peer-reviewed?  Yes
NIDILRR-funded?  Yes

Structured abstract:

Background:  To support adults with intellectual and developmental disabilities to experience a better-quality life, national, state, and local governments offer a variety of long-term services and supports. However, the responsibility of qualifying for and accessing long-term services and supports often falls outside of these systems and on the adults with intellectual and developmental disabilities and their families.
Purpose:  Given the family’s role in securing long-term services and supports, this qualitative study investigated the perspectives of families of adults with intellectual and developmental disabilities and their experiences learning about and qualifying for Home and Community-Based Services Waivers, a common funding source for long-term services and supports.
Data collection and analysis:  Relying upon qualitative methods associated with grounded theory, six mothers of adults with intellectual and developmental disabilities from three states were interviewed.
Findings:  Analysis of interview transcripts revealed five themes addressing: families’ reasons for seeking HCBS Waivers, families’ experiences learning about HCBS Waivers, frustrations encountered, families’ suggestions for change, and parents’ characteristics and roles.
Conclusions:  Interview results provided a nuanced understanding of participants’ perspectives and experiences, highlighting their active participation, emphasizing the challenges they have encountered, and uncovering their suggestions for change. Implications for research and practice are discussed.

Disabilities served:  Cognitive / intellectual impairment
Developmental disabilities
Multiple disabilities
Interventions:  Community-based instruction
Transition services
Needs and resource assessment
Outcomes:  Other